Monday, April 13, 2015

4/12/15-Breaks from Reality

Taken in April 2014.
From Dallas through Austin to Goliad.
Since creating my first blog in October of 2011, the months of October and April have been of significance. (I created a list below with some links to previous blog posts.)

This April is significant because this past week scared me. It took me awhile, since I'm not afraid of death, to figure out what the fear was about. I believe in Oneness and infinite spiritual energy - all that has already been, all that will ever be, is already present. I'm really not afraid of death and yet this past week I lived in terror for several days. It baffled me.

I endured full blown panic and anxiety attacks this week and came to realize that they revolved around breaks from reality. I shared some symptoms in my last post, but not these. On Wednesday, 4/8, my brain asserted a mind of its own and decided that it was Thursday, 4/9.  Trying to reconcile that while interacting with people, responding to emails, looking at calendars, etc., became impossible. So I stopped.

I created a timeline of the week. I remembered grocery shopping with my friend Glenn and saying goodbye to him as he embarked on the freedom trail of open roads once again, and I remembered going to my primary care doctor that afternoon. Only that didn't happen on Tuesday as my brain was trying to tell me it did; it happened on Monday. What then happened on Tuesday and Wednesday? It took me over an hour to recreate Monday and Tuesday, and get the placement right. Even with it mapped out, evidence in black-and-white right there in front of us, my mind would not operate from Wednesday. It was Thursday and there was nothing I could do to convince it otherwise.

I decided to take a break and heat up some coffee. I nuked it for what I thought was the normal 30 seconds and took a sip - of boiling milk. I scalded my mouth and still have blisters. I looked at the milk in the cup and knew it was milk, but my brain would not accept it. I even argued that coffee doesn't bubble and is not white. My brain would not give in. It held steadfast that the bubbly white liquid was coffee. Another break from reality and it felt ludicrously crazy. I fell on the floor sobbing. After awhile, I called my doctors.

The RN at my doctor's office sped things up for my neurology referral. I will go for more tests soon and finally see a neurologist mid-May. That's with me being placed on the "fast" track. The advocacy center sent a "Peer Certified Specialist" to visit with me for 2 hours the next day - the real Thursday. She was/is wonderful; a Godsend. I was still crying; still disoriented. She is going to see about additional home-health resources for me. With all of that, the doctors agreed I could stay home and not go to the hospital. I am so grateful.

On Friday, friends picked me up and I spent the afternoon with them in the country. My friend's home is beautiful. The whole outing was lovely and fun. They scrapbooked, while I (with their help) put together my 3-ring medical binder. I've been carrying a pile of papers back and forth to each appointment and doctors would get impatient while I rummaged through it trying to find the information they wanted. I am so blessed to have friends and family that love and support me. I was a little worried that I might have another break from reality while away from home, but I knew I was in good hands and I did just fine.

I am better today - obviously, or I wouldn't be able to write this, but it took me awhile to figure out what was lying beneath all that fear. I finally got it.

It's not just grieving the loss of my freedom - and I maintain that this immobility is temporary. And it's not just the fear of losing my mind - it is not my Higher Self. I know that I am not this. We are in the world but not of the world. The great I AM is eternal. So then, what was up with the fear?

I've had breaks with reality before. At 16, alone with strangers for Thanksgiving and no family or friends to turn to, I tried to commit suicide. I've written about it on my blog before. It was impulsive with no anterior history. At 35, I was hospitalized when long-ago buried memories of childhood trauma surfaced. And at 51, I began experiencing seizures due to my TBI, was facing a divorce, the loss of my job, and ultimately foreclosure on my home that I had saved my whole life to buy. I was hospitalized for depression.

The break with reality this week, although manifested from a neurological disorder, brought up all of that. Whomp! In my face - with no warning.

I have started from scratch and rebuilt my life so many times it is difficult to keep track of the events, let alone the chronology. I didn't want to write this post. More accurately, I didn't want to publish this post. I fear what people will think. I fear what people will say. And above all that, I fear that people will go away.

I have wonderful people in my life now. People that love me for who I am. They don't judge me from whence I came - nor do they necessarily know the depths of me. I can no longer hide from that and be authentic.

In publishing this I am answering the call to be bold and brave - like so many who have championed the way before me. I am saying that I am willing to walk alone should those I love turn away. Some may think it unnecessary for me to write of such things publicly. It would be easier not to, but I also know I am being called to be transparent and write from my heart. I am to trust the path I am being drawn to walk; it's almost like being pulled and only one step at a time is being illuminated. I feel I truly will go insane if I don't write that which is on my heart to write; all of it. So, in faith, I go with the flow and write:

Breaks from reality petrify me.

I'm not who I used to be and I don't want to go there again. This illness has hit me in my weakest spot. Or, probably more accurately, it has hit me in my vulnerability where I most need to grow.

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OCTOBER/APRIL CHRONOLOGY


KOKO!




Thursday, April 9, 2015

4/9/15-The Brain Game

Pic from FB-Page Unknown
Life - our bodies, nature, the universe, plants, animals, the oxygen we breathe, our interactions with all the other elements of the periodic table - is such an intricate balance. Simply awe-mazing. I am inspired as I observe my wonky brain and its imbalance. 

With the help of Siri, I can create this blog post but I can't fix myself breakfast. I can let the dogs out before the rains come, but I can't wander from the trailer because I might get lost. I can remember that it might rain but I can't retain the day or date for more than five minutes.

My brain and my ability to process is in constant flux but something has changed since yesterday morning. I am resting while waiting on my doctor to call me back with my marching orders. Yesterday he told me I will most likely be hospitalized for testing. I guess I will know by the end of the day. But here's the oddest thing....

Without looking at my tweets, texts & emails from yesterday, I can't recall what happened.

I look at my white board that lists my reminders for writing (I now have many whiteboards in my home with a variety of instructions and reminders), and it reminds me I want to do a post on "It Takes A Village". I want to write a thank you to all the wonderful people that lift me up. The brain is amazing. I can write about writing about it, but I can't process well enough to include any details that are required for specific examples. So, thank you. All of you. You know who you are, hopefully.

I am scared. So, unable to process a prayer or meditation on my own, I turned to my trusty handheld computer called a phone & touch the icon for The Daily Word. Their article below says it all. Thank you living, loving God. My needs are always met in the most beautiful ways. I am grateful.

My doctor told me recently that I can wake up one morning and never again remember who I am.  My reply was, "Isn't that true for everyone?"  I know this: The great I AM has always been and will always be. "I" am not "this".

All is well, always, no matter what.

The Daily Word:
Protected - Divine light within me illuminates the darkness and dispels all fear.

Namaste. I love you.

Thursday, April 2, 2015

4/2/15-Of Mice and Me


I use live traps to catch mice.  It hasn't been an issue since moving to Gtown, but when I lived in the country, in Goliad, mice in the area knew a good thing when they saw it.  They too wanted to live in the palace, evidently, and I frequently would haul them off and give them a new address.


I thought I did a pretty good job of keeping them at bay (so to speak).  But today, an RV tech came to ready my A/C for the summer and I had him check all vents.  One of them was clogged with old mice nests.  Yuk!  I suppose the good news here is that they were "old" nests, and they were contained to only one duct.  But yuk!  We ended up having to pull the entire run.  I cleaned and sanitized and cleaned some more.

I start new meds tonight for my seizures.  I hope the doctor is right and they will help slow them down, but mostly, after the events of today, I hope it helps me sleep.  If it weren't supposed to rain, I'd probably spend the night outside.  Nonni and Bentley?  They can sleep through anything and in spite of everything.  Check out the tongue action. LOL.